Past Conferences
Past conferences
Fourth conference on the Assessment, Diagnosis & Multi-Disciplinary Management of People with Complex Neuro Disability & Disorders of Consciousness
Conference date: June 2022
Programme
Day 1: MDT conference (Part 1) Thursday 16th June 2022
08.45 – 09.10 Registration & Coffee
09.10 – 09.30 Opening Introduction. Ross White CEO, Holy Cross Hospital
09.30 – 10.25 The updated RCP Prolonged Disorders of Consciousness national clinical Guidelines: 2020 – What has changed? Professor Lynne Turner-Stokes DM FRCP Director, Regional Rehabilitation Unit, Northwick Park Hospital, Harrow
10.25 – 10.45 Coffee & Networking
10.45 – 11.30 Assessment of people with a Disorder of Consciousness using WHIM II Professor Agnes Shiel, Professor of Occupational Therapy, National University of Ireland, Galway
11.30 – 12.45 Expert Panel Q & A. Clinical implications of current research and the way forward
Theme 1: Assessment and Diagnosis
Theme 2: Medical Management
Questions to the panel to be sent by delegates 2 weeks in advance
Panel experts: Professor Lynne Turner-Stokes, Professor Agnes Shiel
12.45 – 13.45 Networking & Lunch
13.45 – 14.30 Physical management in patients with DOC. Update on the recently published clinical practise guidance. Dr Stephen Ashford Senior Clinical Lecturer and Consultant Physiotherapist, Regional Hyper-acute Rehabilitation Unit & King’s College London, Northwick Park Hospital
14.30 – 14.50 Recent Research Series (abstracts invited on the following topics: Awareness Assessment, WHIM 2, EEG, fMRI, Physical Management)
Assessing the return of communication in patients emerging from PDOC.
Amy Pundole, Clinical Lead Speech and Language Therapist, Royal Hospital for Neurodisability, Putney.
14.50 – 15.10 The implementation and monitoring of a weekly interaction group for people
in (or recently emerged from) a prolonged disorder of consciousness
Amy Endacott, Specialist Speech and Language Therapist, Regional Hyper-Acute Neurorehabilitation Unit, Northwick Park Hospital.
15.15 – 15.35 Tea
15.35 – 17.00 Expert Panel Q & A. Clinical implications of current research and the way forward
Theme 3: Physical Management
Theme 4: Nursing Management and Supporting Families and Relatives
Questions to the panel to be sent by delegates 2 weeks in advance
Panel experts: Prof Celia Kitzinger, Dr Stephen Ashford, Rita Santhirarajah and Professor Anand Pandyan
Day 2: MDT conference (part 2) Friday 17th June
08.45 – 09.00 Registration & Coffee
09.00 – 09.10 Opening Address. Ross White CEO, Holy Cross Hospital
09.10 – 09.55 How prolonged might a prolonged disorder of consciousness be? An 8-year follow up of 74 consecutive research participants reveals significant late emergence and recovery of function. Dr. Judith Allanson, Evelyn Trust Consultant in Neurorehabilitation, Cambridge University Hospitals NHS Foundation Trust Addenbrooke's Hospital, Cambridge
09.55 – 10.45 Clinically Assisted Nutrition and Hydration (CANH) for patients with a Disorders of Consciousness: The decision-making challenges facing professionals and the implications for families Prof Celia Kitzinger, Co-Director of Coma and Disorders of Consciousness Research Centre.
10.45 – 11.05 Coffee & Networking
11.05 - 11.45 Bone Health in Patients with Severe Brain Injuries - Dr Cai Neville, Consultant Rheumatologist, Royal Surrey County Hospital, Guildford
11.45 – 12.30 Challenges in the Management of Epilepsy/ Seizures in People (adults) with Severe Brain Injuries. Professor Matthias Koepp, Professor of Neurology, Institute of Neurology, University College London, and Consultant Neurologist at the National Hospital for Neurology and Neurosurgery
12.30 – 13.30 Networking & Lunch
13.30 – 14.45 Complex Case Study Series (abstracts invited on the following topics: Swallowing, Communication, Nursing, Continence, Enteral feeding, Tissue Viability, Physical Management). Posters will be invited under the clinical headings. 5 X 15 minutes each
14.45 – 15.15 Tea
15.15 – 16.00 Catholic perspectives on disability and withdrawal of nutrition and hydration in people with severe brain injuries. Father David Murphy, Chaplain to Holy Cross
16.00 – 16.45 SMART Version 3: Streamlined and Enhanced to Promote a Bespoke Assessment and Investigation of the PDOC Patient. Helen Gill-Thwaites MBE, Royal Hospital for Neurodisability, Putney.
Third conference on the recent advances in the assessment, diagnosis and multidisciplinary management of people with Disorders of Consciousness (DOC)
Conference date: October 2018
Reference material
Conference Welcome, Ross White, CEO
Definitionand Diagnostic Criteria for Post-Traumatic Confusional State, Dr Mark Sherer
Ethics, Spirituality & Care, Rt. Rvd. Dr Christopher Herbert
Supporting families of people with severe brain injuries and Disorder of consciousness (DOC): What can professionals do
Conference date: October 2017
Topics and speakers included:
- Decisions about life-prolonging treatment for patients in prolonged disorders of consciousness - working with families to inform best interests decisions. Jenny Kitzinger, Professor of Communications Research, Cardiff University. Co-Director of Coma and Disorders of Consciousness Research Centre (delegates may view video here)
- Supporting Children/ Teenagers of patients with DOC/ Profound brain injuries. Dr Andrea Pickering, Consultant Clinical Psychologist, Department of Neuropsychology, RECOLO (delegates may view video here)
- “Neither a wife nor a widow”: The challenges PDoC creates for families. Sonja Soeterik, Consultant Clinical Psychologist, Research Fellow, Institute for NeuroPalliative Rehabilitation (delegates may view video here)
- “I’ve already told the family that!”: An intervention with staff to improve information sharing with families. Katie Richards Therapy Manager & Taryn Holman Neuro-physiotherapist, Royal Hospital for Neurodisability, Putney (delegates may view video here)
- A Prospective Case Series to Investigate Current Practice in the Physical Management and its Impact on the Pattern of Limb and Spinal Deformities in People with a Disorder of Consciousness. Rasheed Meeran MSC MCSP, Director of Clinical Services, Holy Cross Hospital (delegates may view video here)
Recent advances in the assessment, diagnosis and MDT management of people with Disorders of Consciousness (DOC)
Conference date: September 2016
This conference was aimed at nurses, physiotherapists, occupational therapists, case managers, personal injury lawyers and other professionals who work with people with DOC. Expert clinicians and leading academics also talked about recent advances in the field.
Click to download conference information
Click to download draft programme
The JFK Coma Recovery Scale Revised: Clinical and Research Applications
A training seminar for rehabilitation professionals — September 2016
Course instructor: JOSEPH T. GIACINO, PhD
Downloads:
An Overview of the Coma Recovery Scale — Revised (CRS-R)
The Spaulding Disorders of Consciousness Comprehensive Evidence-Based Assessment Battery
Click to download seminar information
Downloads from the 2016 Conference:
Measuring Spasticity in people with DoC-from the lab to the bed side. Anand Pandyan
Back to the bedside? Making clinical decisions in patients with a prolonged disorder of consciousness. Dr Derick T Wade
Ethical principles in the management of people with a disorder of consciousness (DOC) –A Roman Catholic perspective. Rev Dr Trevor T D Welland
Advances & Considerations in The Use of Intrathecal Treatments for Managing Spasticity. Hayden Kirk
Recent Advances in the Assessment and Diagnosis of Disorders of Consciousness: Behavioral and Neuroimaging Applications. Joseph T. Giacino, PhD
Recent findings from fMRI and implications for the investigation of people with Prolonged Disorders of Consciousness. Judith Allanson MA BM BChPhD FRCP
Challenges for Allied Health Professionals working with disorders of consciousness patients and their families. Prof Jenny Kitzinger
Optimizing Circadian Rhythm and Characterizing Brain Function in Prolonged Disorders of Consciousness. Dr Kudret C. Yelden, MRCP
Music Therapy in the Assessment and Rehabilitation of Prolonged Disorders of Consciousness: Lessons from Research. Sophie Rappich
Complex Coping and Complex Caring: The Experiences of Families and Healthcare Professionals Supporting People with Disorders of Consciousness. Sonja Soeterik. C Psychol, AFBPSS, HCPC
Electroencephalography in Disorders of Consciousness. Srivas Chennu PhD
Physical and pharmacological intervention for spasticity and contracture management: A multi-causative and mutli-management picture. Dr Stephen Ashford
Learning from contracture management in Stroke -recent review & views of therapists in DOC. Venugopal Durairaj
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